rain on tulips

waiting for a little girl to wake up from sedation from her latest mri… this one is supposed to be just a followup, but i’ve learned not to hold my breath. followups never seem to be just followups. we ought to know more today, tho, as we are scheduled to see the referring dr later this afternoon.

Update: This was the worst wake-up EK has ever had from anesthesia; I think it was a combination of the anesthesia and just not wanting to be at the hospital, but she was grumpy for a good hour and a half, right up until we were walking out to the car, then she was all smiles!

As far as the follow-up goes: the syrinx on her spine is holding steady, which is good news (it’s not relocating or expanding). The cysts that were seen in her brain when she was younger are no longer visible, also good news. She does not have Agenesis of the Corpus Colossum (a common occurrance in 1p36 kids where a central piece of the brain fails to develop), which is fantastic news. She may have a slight Chiari Malformation (where part of the brain matter extends down into the spinal canal), which is definitely blocking some spinal fluid flow, but not totally impeding it, and needs to be watched/monitored, which is not so good news, but not horrible news. If it becomes worse in the future, it is surgically repairable, which is good news.

In the meantime, we take her home (with a detour to Burger King and a hamburger and a strawberry milkshake) and bring her back for a followup in a year!